ISPD Collaboration Corner

The ISPD Collaboration Corner is a pathway for building inter-disciplinary research in fetal conditions and treatment. We invite interested researchers who are seeking additional investigators or patients to have their study posted here for a period of 30 days by completing the submission form provided on this page.

Listed below are studies seeking additional investigators and/or patients. If you are interested in participating in one of the studies listed on this page, please use the email address provided to contact the researcher directly.

Collaboration Posters — ISPD also accepts abstracts for collaboration posters at the annual conference. This poster format makes a great conversation starter for researchers who are seeking collaboration on research, feedback on study design, etc. Look for a link to the next upcoming conference on the ISPD home page.

 

Principal Investigators

Are you seeking additional investigators and/or patients for your study? Please complete and submit the study listing form to have your study listed on this page.

Studies will be posted for 30 days.

Submit a Study Listing

If you prefer, you may use a PDF submission form instead.

STUDY POSTINGS

 2020-03-30_UCSF_JacobyV
(3/30/2020)
 
   

Study Name:  PRIORITY: Pregnancy CoRonavIrus Outcomes RegIsTrY

Principal Investigators: Vanessa Jacoby, MD, MAS, et al., University of California - San Francisco, PRIORITYCOVID19@ucsf.edu

Collaborating Investigator(s) Sought: Patient Referral

Patients Sought: Yes. HOW TO REFER A PATIENT - (Suspected/Under Investigation OR Confirmed Case, any language spoken): You do not need IRB or Research Ethics Board approval at your site because no research activities will occur there. Please ask the patient if she is willing to have her contact information shared with us. If yes, you can click here to Refer a Patient, or call/text 415-754-3749, or email at PRIORITYCOVID19@ucsf.edu. The patient can also contact us herself at For Patients: Enroll in PRIORITY. We will then reach out directly to her to consent, enroll, and begin data collection. Here are more details about the study procedures: Information for Providers. If you are willing, please circulate to your colleagues.

Study Website: priority.ucsf.edu

Study Flier: PRIORITY Study Flier

Funding: Not disclosed



 

 2020-03-09_UCSF_MacKenkieT
(3/9/2020)
 
   

Study Name: A SINGLE-CENTER, NON-RANDOMIZED STUDY OF THE SAFETY AND EFFICACY OF IN UTERO HEMATOPOIETIC STEM CELL TRANSPLANTATION FOR THE TREATMENT OF FETUSES WITH ALPHA THALASSEMIA MAJOR

Principal Investigator: Tippi MacKenzie, MD, University of California - San Francisco, tippi.mackenzie@ucsf.edu

Collaborating Investigator(s) Sought: No

Patients Sought: Male or female fetuses 180/7-260/7 weeks gestational age, diagnosed with alpha thalassemia major by either chorionic villus sampling (CVS), amniocentesis, or cordocentesis, or by identification of parents as genetic carriers and identification of fetal anemia, for whom parents elect to pursue IUT, and undergo subsequent IUT for the remainder of gestation. 
Fetal subjects who have received prior IUT may be included. 
Fetal subjects with other alpha thalassemia variants who present with clinic or laboratory characteristics consistent with Hemoglobin Barts syndrome will be included.

Funding: CIRM



 

If no studies are listed, there have been no studies submitted within the last 30 days. Please return to check for further postings.

ISPD does not review nor specifically endorse any study posted to the Collaboration Corner. ISPD acts solely in the capacity as a facilitator. The submitter is responsible for the accuracy of the information provided and agrees to having the email address of the principal investigator posted on the ISPD website where it is visible to the general public.