Special Interest Group (SIG)

Genetic Counseling, Ethics, and Patient Education

Co-Chairs: Lynn Wein Bush, PhD MS MA and Samantha Stover, MS, CGC

SIG Roster (member sign-in required to view)

Lynn Bush

Sam Stover

This SIG provides a forum for engagement around genetic counseling, patient education, and ethical issues arising in reproductive testing and fetal therapy. Activities include preconference courses, input into guidelines, provision of resources and engaging with SIG members. This SIG welcomes collaboration with other SIGs within ISPD.

SIG Topics of Discussion/Interest

Screening and diagnostic techniques
International collaboration among GCs
International utilization of GCs
Ethics and counseling in reproductive genetics and perinatal medicine
Informed choice and informed consent
Disclosure of incidental findings
Equity in access to services
Preconception screening
Ethics and fetal therapy

Global Updates Articles

SIG Meeting at the 2023 ISPD Conference (2023.3)

Navigating the Landscape of Language (2023.2)

Improving the safety of fetal therapy trials and studies (2022.2)

Ethics and Prenatal Screening: A Round-Up of Recent Developments (2021.3)

Update from the Ethics SIG (2020.2)

International Context-sensitive Practice in Prenatal Counseling and Clinical Practice (2018.4)

Recent Developments in Prenatal Care and Ethics (2018.1)

Genetic Counselors Play Integral Role at ISPD's International Conference (2017.5)

Increased Nuchal Translucency (2016.3)

Recommended Reading/Viewing

ISPD Position Statements (Professional Communications Page)

Surprising Findings on NIPT (VES Webinar, 14 Dec 2022)

Genetic work-up of the increased nuchal translucency (VES Webinar, 17 Nov 2021)

TALK 2: Triplet pregnancy: What do we tell prospective parents& (VES Webinar, 13 October 2021)
Talk 2 begins 30 minutes into the recording.

TALK 2: Omphalocele — What should we tell the prospective parents (VES Webinar, 5 May 2021)
Talk 2 begins 28 minutes into the recording.

TALK 2: Spina bifida: What we tell the parents (VES Webinar, 7 Apr 2021)
Talk 2 begins 27 minutes into the recording.

ISPD Position Statement on (cf)DNA screening for Down syndrome in multiple pregnancies (VES Webinar, 2 Dec 2020)

Genetic Counseling (VES Webinar, 11 Nov 2020)

Debate 2: Expanded NIPT that includes conditions other than trisomies 13, 18, and 21 should be offered (VES Webinar, 28 Oct 2020)