Study Name:  Core outcome set for spina bifida (COSMIC)

Principal Investigator:  Prof. Tim van Mieghem, Mount Sinai Hospital / Ontario Fetal Centre, [email protected]

Collaborating Investigator(s) and Patients Sought:  Anyone with clinical, research, or lived experience of fetal Spina Bifida with sufficient knowledge of English and internet access. This includes patients, caregivers, researchers, and all types of healthcare providers (surgeons, anesthetists, nurses, midwives, pediatricians, occupational therapists, social workers and so on.)

• Complete 2–3 short online Delphi surveys over the next couple of months (≈10 minutes each).
• If you wish, join a brief virtual meeting in late July to confirm the final list of outcomes.
• Distribute this study to colleagues you may think are interested in participating in this initiative.

Study Website:  https://app2.welphi.com//Pages/RedirectPage.aspx?myXYQKZpuWCCCFfqUgpLAa1oFYSHv5g6NyT3NDrCeJA=

Study Information:  https://trialsjournal.biomedcentral.com/articles/10.1186/s13063-020-04668-6

Funding: Tim van Mieghem is the recipient of a junior faculty award from the Department Of Obstetrics and Gynaecology at the University of Toronto.